Tuesday, February 21, 2012

Our Beautiful Baby Boy --Update

scan0001

 

Today we got the last of the test back from the amnio that we did almost two weeks ago.  I can’t believe it’s only been 2 1/2 weeks since we found out about our babies struggles, it feels like months. Well, so far everything that they have tested for has come back normal.  From his chromosomes to all the viruses, everything looks fine.  But obviously everything isn’t fine, or he wouldn’t be having such serious problems.   Right now we don’t even have a plan for what to do next, the people that we are working with at the U of W were either out of the office today or to busy to contact.  But another genetic counselor talked to another doctor and asked them what they would do.  The answer- another ultrasound sometime next week, probably on Wednesday, then hopefully some kind of planning session between the doctors and us about what we can do going forward.  They are also going to tell the Lab to keep his cells that they collected from the amniotic fluid alive incase the doctor we are working with wants to test for something else.   We also are going to have my care moved to Seattle, meaning that things are going to get a lot busier around here as Seattle is a 2 hour drive one way, and I’m not sure as of yet how often I will have to go down there.  But we are still very hopeful for some kind of treatment plan, or something. 

2 comments:

  1. Still sending prayers your way. Hoping for a miracle to make everything fine and all worries to go away! I love you, dear, dear friend!

    ReplyDelete
  2. Wow. I can't tell you how much I wish I was around to help out with everything. You're going to need someone to watch your kids every time you drive to Seattle which sounds like it will be quite often!! We will continue to pray for your family and your beautiful baby boy every night. I really hope that there is a miracle resolution to this story.

    ReplyDelete